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Sunday, August 23, 2009

A Good Day

Our portion of MRI -- a few hundred dollars
Parking fees at 2 different facilities -- $14
Co-pays for 3 different docs -- $90
Finding out your kid will be fine -- priceless

So Chip has been having some issues w/ his eyes. If you know much about brain tumors, you know that eye symptoms freak out parents of BT kids. I was fairly sure that Chip's problems were just w/ his eyes, but it was still hard not to worry.

Long story short, we headed to ATL this week for an MRI, to see Dr. Claire, and to see a neuro-opthamologist. The MRI was normal (thank you, thank you, thank you). After learning that, we headed to Piedmont to see the neuro-opthamologist. She agreed w/ us that he was definitely struggling w/ his vision, but she wasn't sure exactly what was going on. She was great and very thoughtful and called a friend of hers, a peds opth. at Scottish Rite. He was very kind and agreed to work us in that day. We met him and he quickly assessed Chip, put some drops in his eyes and said he'd be right back to let us know what was going on. We were surprised at his quick assessment and the impression he already knew what was going on (we'd already seen a doc here locally who was stumped as well). He stepped out for a couple of minutes. Upon coming back in, he looked in Chip's eyes briefly again and then sat back and told us that Chip was going to be fine. He said he has ocular motor apraxia. Basically, he can't track objects with his eyes. While we wish his eyes worked perfectly, this is SO TOTALLY something that we can handle! The problem will improve as he gets older and we are investigating occupational and/or vision therapies.

We are doing well (esp. now!!) and things continue to clip along at a quick pace. The kids are growing, are doing well at the sitter's while I'm teaching, and are, as always, keeping us on our toes!! We love the normalcy that has invaded our lives and we are grateful for it each and every day.

Please pray for our friends, the Maxeys. Their 1st daughter, Maddy, and Catie were in treatment together. They lost Maddy shortly after her 1st birthday. They are now facing extremely tough times w/ their 3rd child (2nd daughter). Please pray for Kirk, Natalie, and big brother Grant, as they take sweet Annette home. www.maxeyweb.com